Sawyer's Cranio Friend

This past weekend we met with another family in Des Moines whose daughter has also been diagnosed with Craniosynostosis. We met on a site called Cranio Kids. This is an on-line support group for parents whose children have been diagnosed with Craniosynostosis. It has been my savious through Sawyer's journey. Kailan and I quickly connected once we realized we were both located in Des Moines. We started emailing back and forth quite frequently keeping each other updated with our kids. After about 3 months we finally decided it was time to meet. Kailan was kind enough to have our family over to her house for dinner the past Sunday. What a wonderful family! They have a 5 year old son, Isaiah, 2 year old daughter, Eve, and of course Teshura who is 1 month younger than Sawyer. Tesh has Sagittal Craniosynostosis. Even though both babies have Craniosynostosis they each look so different because they have different types. Sawyer has metopic which causes his head to be triangular and have a pointed forehead. Tesh has an elongated head shape. She will be having her surgery in May at the University of Iowa Hospital. Tesh's surgery will be a little less invasive, as she doesn't need the forehead reconstruction like Sawyer.

The kids were so cute and sweet. All of them had so much fun playing together. It was so nice to actually meet in person. This has been such an emotional experience and being able to share it with other Mom's that truly understand is a blessing. Here are some pictures from our visit.

I just love how it looks like Tesh is comforting him!

Kailan with Tesh Me with Sawyer